I’ve read that it’s often called the unseen disorder – fibromyalgia.. difficult to diagnose, unseen symptoms, and a stigma of disbelief. I have only recently been diagnosed after two years of misses, multiple tests, and an escalation in pain carrying over ten years. It was my husband that insisted I finally get checked out. Process of elimination, I was told.. my diagnosis was left on my voicemail. Harsh as the delivery method sounds, I was glad to have a name to put with the face. Soon after, I would revisit my rheumatologist for a game plan.. and meanwhile, since I didn’t know much about it, I put on my big girl panties and started researching.
Once I passed my “what fresh hell is this” stage – there isn’t a lot of positive vibe out there, I realized something.. those of us living with this, WE are the unseen. We often wear a mask to push through the pain, and when we are lucky to have days where we feel almost normal, we carry that stigma of disbelief. We are perceived as being okay at best.. faking the extent of what we feel at worst. There are no definitive tests as of yet that we can hold up and say to the universe “see, my pain is real!” So much misinformation exists. It’s hard to keep your chin up in such circumstances, but I am trying. I wish I had the answers. I am at least blessed with a supportive husband and I have a doctor who is working with me. I can hold my head up and speak from the depths and say my pain exists.. and I support those like me who need to be seen.